Caring for a baby with a serious heart problem can be challenging and frightening. It is very important for nurses to offer them support and address all of their questions and concerns appropriately. Parents should be encouraged to record their baby's health history, including diagnosis, medications, surgery and other procedures, the dates that they were performed, and any other important information about their baby's care. This can help to recall the care their child has received and in communicating with other health care professionals. The family should always be included in the care and decisions. Be knowledgeable of and recommend local and national support groups that they can joins such as:
|
National
You may be able to find some of your local and national support groups here. |
References
http://www.mayoclinic.org/diseases-conditions/transposition-of-the-great-arteries/basics/coping-support/con-20043232
http://kidswithheart.org/
https://www.littlehearts.org/
http://www.mendedlittlehearts.org/services.shtml
http://www.childrenscolorado.org/departments/heart/resources
http://www.intermountainhealinghearts.org/
Photo Credits
http://portal.geneticalliance.org/timthumb.php?src=http%3A%2F%2Fportal.geneticalliance.org%2Forgfiles%2Fkids_with_heart_logo.gif&h=114&w=114&zc=3
http://www.guidestar.org/ViewEdoc.aspx?eDocId=2235479&approved=True
http://www.cooperscause.com/images/mended-little-hearts-lrg.png
http://www.rhof.org/portals/0/images/2009_charities/logos/CardiacKids_logo[1].JPG
http://intermountainhealinghearts.webs.com/Heart%20in%20Front%20Logo.jpg
http://www.mayoclinic.org/diseases-conditions/transposition-of-the-great-arteries/basics/coping-support/con-20043232
http://kidswithheart.org/
https://www.littlehearts.org/
http://www.mendedlittlehearts.org/services.shtml
http://www.childrenscolorado.org/departments/heart/resources
http://www.intermountainhealinghearts.org/
Photo Credits
http://portal.geneticalliance.org/timthumb.php?src=http%3A%2F%2Fportal.geneticalliance.org%2Forgfiles%2Fkids_with_heart_logo.gif&h=114&w=114&zc=3
http://www.guidestar.org/ViewEdoc.aspx?eDocId=2235479&approved=True
http://www.cooperscause.com/images/mended-little-hearts-lrg.png
http://www.rhof.org/portals/0/images/2009_charities/logos/CardiacKids_logo[1].JPG
http://intermountainhealinghearts.webs.com/Heart%20in%20Front%20Logo.jpg